Thursday, December 1, 2011

Hmmmmm......

Things have been changing rapidly. I'm still achy all over and soooooo drained. After the emergency room my heart palpitations slowed down a lot but they are still happening. As I lay down at night and start to fall asleep I have these full body jerks that wake me up. I have had twitching all over my body constantly for the past three days. Today my right leg and left knee are twitching. Yesterday was my stomach, in that second painful spot I have. The day before that it felt like someone was tapping on my shoulder all day. It's so weird.

The biggest scare was yesterday. My sister Jenny was at my house and we were sitting at the kitchen table talking. All of a sudden there was a black spot on her face and I couldn't see the clock out of my left eye. It started getting worse so she told me to go lay down. I slept for about an hour and when I woke up my vision was almost back and I had a slight headache on the right side of my head. It wasn't unbearable, the way I picture a migraine. I've never had one before though so I don't know. Anyway, I threw up a few times and then felt almost all better. I've never lost my vision before and I hope that doesn't happen again.

I read that drinking lots of water helps with twitching so I'm doing that. My magnesium and calcium levels were normal in the ER so I know that isn't causing any of this. Also, I am completely off all medications now so these aren't side effects.

I'm seeing my physiatrist tomorrow. He and Mom really think it's Fibromyalgia which can make your nerves go crazy. If that is the case, I hope it can explain the nerve injuries popping up all over my abdominal wall.

I mentioned to a neighbor that I was being checked for Fibromyalgia and she told me to call another neighbor of ours who has it. When I called her she told me that I would be the 7th woman in our neighborhood she knows of to be diagnosed with that. SEVEN!! That is insane. My first thought was "What is in this water we are drinking?!" I'm looking into it. That just seems like too much.

Hopefully I will know more tomorrow. I guess a nerve test and possibly brain MRI are next but I think the MRI will be a waste of money and I might not bother. Everything comes back normal. I'm sick of hospitals and tests.

I have noticed that I have periods of extreme stomach pain and then go for a week or so with none. It really doesn't seem to be tied to my diet. I'm still avoiding gluten and I'm going to try to cut sugar out. I'm saving up to buy essential oils and will hopefully be starting Bikram Yoga soon. Dave and I both feel that those things will be beneficial no matter what I have.

Speaking of Dave, talk about amazing. He is so patient and understanding. This experience has been hell for him and he still does everything he can to reassure me and help with the house and kids. I hate for him to come home from long work hours and have to do so much around the house that I should be able to do easily. Oh well though, one day at a time :)

2 comments:

  1. I have done Bikram Yoga for about a year now. I Love it. There is a similar one called Sumits Yoga that is not as long as the Bikram. It's very therapeutic, hope it helps you feel a little better. I can imagine it must be so difficult feeling so awful while caring for the little ones.

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  2. Oh thank you Jodi, I will look into that. If the heat doesn't get me, the 90 minutes definitely does. I usually just can't even move for the last half of the class. Dave got used to it so I think I just need to be consistent! How many times a week do you go?

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